Monday, May 9, 2011

Calling all FOD moms....

We have our first appointment with the geneticist this Wednesday. I am compiling my list of questions for him and don't want to miss any important questions since he isn't local and only comes here quarterly.

I am asking for your help....is there anything that you all think is important to ask?

Thank you for everything these past two months!!!
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1 comment:

  1. Cupcake's MamaMay 9, 2011 at 11:28 AM

    Hi, I don't now if I have any "important" questions per se, as I'm discovering that each patient and doctor are different, so you'll probably be getting slightly different information on how long to go between feeds and how much carnitine to take (if they recommend it).

    I would mostly make sure I have all their emergency info, know exactly what the proper emergency procedure is, and check if they have a phone line that you can call for questions outside of office hours. We've called our metabolic doctor every time Cupcake has been sick just to touch base with them.

    On all our appointments, our doctor has lead the discussion and answered most of our questions before we had a chance to ask them.

    We also met with a nutritionist/lactation consultant there, which was VERY helpful, so you might want to ask about that.

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