I am finding the fear mongers who want us to lock our son away with only play dates at our house where I can enforce a strict "no sickys allowed" policy. I wonder what he would have said if I told him that there may come a time when we will have to send our son to daycare. Would he have called child services?
I am finding Drs that hear about MCADD and instantly put their hands out in front of them in a defensive position stating that they would send my son down the road to the other hospital if he ended up in the ER at their hospital.
I am struggling a bit here, it is hard to think that your child has a condition that some providers don't want to tackle...the search continues.
We do have one more appointment but it is a month away. I am optimistic, he is affiliated with our children's hospital and comes highly recommended.
Only 2 1/2 more days till our appt with our geneticist. Since our son had his first hospitalization my questions have grown exponentially. I cannot wait to get some answers.
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